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19.jul.18 | Por: ABIH-SC

Campanha para tratamento de doença rara dos irmãos João e Miguel

Garotos foram diagnosticados com atrofia muscular espinhal (AME) tipo 1. Valor do medicamento esta avaliado em R$ 4,4 milhões. Os irmãos João, de 6 anos, e Miguel, de 11 meses, de Florianópolis, enfrentam o desafio na luta para sobreviver a uma doença rara, a atrofia muscular espinhal (AME) tipo 1. A enfermidade não tem cura, é […]

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